Nothing About Us Without Us: Co-Designing a Youth Engagement Framework for Adolescent and Young Adult Cancer Care in Regional Settings

Nothing About Us Without Us: Co-Designing a Youth Engagement Framework for Adolescent and Young Adult Cancer Care in Regional Settings

Nothing About Us Without Us: Co-Designing a Youth Engagement Framework for Adolescent and Young Adult Cancer Care in Regional Settings


Dr. Joanne Tay

University of Windsor



FUNDER: Windsor Cancer Centre Foundation

DURATION: 2026-2027

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Related Programs:
Nucleus Cores:

Young people with cancer have unique emotional, social, and decision-making needs that are not always addressed in healthcare systems designed for children or older adults. This project will work with adolescent and young adult (AYA) cancer survivors, caregivers, and healthcare providers to develop a framework that helps young people take a more active role in their care. Through discussions and collaborative workshops, participants will identify practical ways to improve communication, support decision-making, and ensure youth voices are heard throughout the cancer journey. The goal is to improve the care experience and better support the needs of young people with cancer.

By building on the experiences of young people with cancer, this project will help create practical tools that support meaningful participation in care decisions and strengthen partnerships between patients and healthcare providers.

Co-Investigator:

University of Windsor

  • Dr. Jessica Kichler

Collaborators:

Windsor Regional Hospital

  • Dr. Laura D'Alimonte
  • Dr. Mohammad Jarrar

Patient Partner:

  • Kristen Efremov
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